About Us

We formed in 2001 as a small group of fellow suffers. Our first meeting was in the Spa Hotel in Lucan. Since then we have shifted venue a number of times and now meet up in the Maldron Hotel in Tallaght.
We see our role as a support for all those diagnosed with TN and with limited funds try to raise awareness.

Trigeminal Neuralgia Ireland Support Group

This is a story from one of our members.

"I got Trigeminal Neuralgia July 2013,
It started as an electrical shock pain in my jaw. The pain was like cold ice cream on a sensitive filling, except  no filling in that part of my jaw. After a couple of days I was certain that every tooth in the left/right hand side of my upper/lower jaw was rotten. The pain also lead up to my ear, which isn't uncommon with dental issues. 
I went to the dentist who found nothing, my teeth and gums were perfect in his opinion. Despite his findings, he prescribed me some anti-biotics.
One week and a doctor on call visit later, i went to my GP. Within minutes, he diagnosed me as having Trigeminal Neuralgia."

  • This story is not uncommon. Often referred to as suicide pain or tic douloureux, TN afflicts 4.3 per 100,000 individuals (per year) and is often referred as the worst pain known to mankind.
  • The road to diagnosis can sometimes be bumpy. Lot's of GP's and dentists may not be very familiar with TN, and it could take a long time and many Neurology referrals for a firm diagnosis to be made. 
  • Sometimes an issue with the Trigeminal Nerve can be seen on an MRI scan, but most of the time nothing shows up. 
  • There is no test for TN, just doctors' expertise and tests that rule everything else out.
Medications are prescribed to alleviate symptoms and manage pain. 
These include:
carbamazepine, baclofenlamotrigineoxcarbazepinephenytoingabapentinpregabalin

There are surgeries and procedures that can be carried out:
  • Microvascular Decompression (MVD)
  • Gamma Knife Radiosurgery
  • Nerve Blocks
Living with Trigeminal Neuralgia is not easy, and often many things in your life will change. It is the little things that matter, for example: I cannot go out on a cold, windy day. Even if there is a slight breeze, the pain it can cause is excruciating. Certain foods are hard to eat with TN pain. I cannot remember the last time that I ate an apple. The medications that we get prescribed can also have a negative effect. Weight gain, memory loss, drowsiness and dizziness are to name a few. 

Despite all of this, it is important not to lose hope. There are new studies being conducted all the time, new drug trials and hopefully all of this will lead to a cure. The specialists in this field are absolutely amazing, and they really try their best to try and beat this pain. 

Above all, we are a group of people who suffer from this condition. We aim to support each other, provide awareness and we strive to do the best we can to make people understand what TN is. We hold meetings every couple of months where we have an open forum or invite guest speakers to take part. Our next meeting is in the Maldron Hotel, Tallaght, Dublin 24 on September 6th at 2.30pm. 

1 comment:

  1. All thanks to this great herbal doctor who cured me from (LUPUS DISEASE) his name is dr imoloa.  I suffered lupus disease for over 8 years with pains like: joints, Skin rash,  Pain in the chest,  swollen joints and many more.  The anti-inflammatory drugs couldn’t cure me, until I read about his recommendation. 2 months ago, I contacted him through his email address. drimolaherbalmademedicine@gmail.com . and he sent me the herbal treatment through DHL courier service and he instructed me on how to drink it for good two weeks. after then,  And I was confirmed cured and free at the hospital after taken his powerful herbal medications You too can be cured with it if interested, he also uses his powerful herbal healing medicine to cure disease like: parkison disease, vaginal cancer, epilepsy,  Anxiety Disorders, Autoimmune Disease,  Back Pain,  Back Sprain,   Bipolar Disorder,  Brain Tumour,  Malignant,  Bruxism, Bulimia,  Cervical Disk Disease, cardiovascular disease, Neoplasms,  chronic respiratory disease,  mental and behavioural disorder,  Cystic  Fibrosis,  Hypertension, Diabetes, asthma,  Inflammatory autoimmune-mediated arthritis.  chronic kidney disease, inflammatory joint disease, back pain,  impotence,  feta  alcohol spectrum,  Dysthymic Disorder,   Eczema, skin cancer,  tuberculosis,  Chronic Fatigue Syndrome, constipation, inflammatory bowel  disease, bone cancer, lungs cancer,  mouth ulcer,  mouth cancer, body pain, fever, hepatitis A.B.C.,   syphilis,  diarrhea,  HIV/AIDS,  Huntington's Disease,  back acne,  Chronic renal failure,   addison disease,  Chronic Pain,   Crohn's  Disease,   Cystic Fibrosis,  Fibromyalgia,   Inflammatory Bowel Disease,  fungal  nail disease, Lyme Disease, Celia disease, Lymphoma, Major  Depression,  Malignant Melanoma,   Mania,  Melorheostosis,   Meniere's  Disease,  Mucopolysaccharidosis , Multiple Sclerosis,  Muscular  Dystrophy,  Rheumatoid Arthritis, Alzheimer's Disease, bring back relationship spell.      Contact him today  and get a permanent cure. contact him via... email- drimolaherbalmademedicine@gmail.com  /whatssapp-+2347081986098.
    website-www.drimolaherbalmademedicine.wordpress.com

    ReplyDelete