We all know about the burning, stabbing and shock like pain. We also know about the way the pain travels all over the side of your face (perhaps both sides). I have heard the pain described as a crawling, tingly sensation that is accompanied by frequent shocks that will bring you to your knees.
Every Trigeminal Neuralgia warrior knows exactly what I mean. It's not just TN, there are many other types of neuropathic pain that can be debilitating. Migraines can disrupt your life, and I am not talking about the odd headache that sends you to bed. (They are not nice either.) I am talking about constant throbbing, pulsating and pounding pain. Migraine and cluster headaches are cousins to TN, and that is something that I recently learned from a migraine nurse in hospital.
- So how do I describe the pain to my family and friends?
- How will they understand?
- Will they believe me?
These questions and more have undoubtedly floated through our minds at one point. Most of our pain is invisible, which makes it really difficult for our loved ones to understand. We must try and educate them about what we are going through, not for pity, but for understanding.
There are so many adjectives to describe TN, and we must use them all. Tell them exactly what the pain feels like, explain that open windows, taking a shower and even brushing teeth can cause an attack. Show them a picture of the Trigeminal Nerve. Explain that it is a nerve that also controls sensation in the face and even chewing!
Here is a link to a Wikipedia article.
We are a support group, and we will always help and support each other. If you find it difficult to deal with family or friends please contact us. We will always try and help.
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